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ApoyoDravet

ApoyoDravet is a community created by families of patients affected by rare diseases with epilepsy and Dravet syndrome. It acts as a collaborative platform that connects patients and family members with volunteers and scientists, doctors, psychologists, educators, technicians and others. 

It is a non-profit association with declared Public Utility; that promotes scientific research, medicine, technology and innovation as a part of social intervention seeking to improve the quality of life of patients, their families and their social circles.

ApoyoDravet is a member of the Spanish Rare Diseases Federation (Federación Española de Enfermedades Raras, FEDER), the Spanish Epilepsy Federation (Federación Española de Epilepsia, FEDE), the Dravet Syndrome European Federation (DSEF) and the Ibero-American Dravet Syndrome Support Federation (Federación Iberoamericana de Apoyo Contra el Síndrome de Dravet).